by Kevin Dooley, MD | May 31, 2019 | News and Information
Our team of 30 bike riders will be cycling on June 8 in the Million Dollar Bike Ride, an annual rare disease fundraising event sponsored by the Orphan Disease Center at the University of Pennsylvania. This year, for the first time, we have a team representing...
by Kevin Dooley, MD | Jan 17, 2019 | News and Information
Registration for the 2019 Million Dollar Bike Ride is now open! You can now join Team Cure IBM and register to be a rider in the Million Dollar Bike Ride on June 8, 2019, in Philadelphia. Sponsored by the Orphan Disease Center of the University of Pennsylvania, this...
by Kevin Dooley, MD | Apr 11, 2018 | News and Information
Positive Attitude Patrick Warner is an optimistic person, and that didn’t change when he was diagnosed with a rare, untreatable muscle disease, inclusion body myositis (IBM). Life is an adventure, and Patrick is going to enjoy it. As his muscles gradually deteriorate,...
by Kevin Dooley, MD | Jan 1, 2018 | News and Information
His muscles are being destroyed by a disease called inclusion body myositis (IBM), but Martin Jarry is resilient. After recovering from the shock of his diagnosis, he began to fight back, working to increase public awareness of myositis and to bring hope to other...