by Kevin Dooley, MD | Aug 26, 2020 | News and Information
The Orphan Disease Center 2020 Million Dollar Bike Ride Grant Program is offering a $68,245 grant for the study of inclusion body myositis (IBM). Researchers from around the world are eligible to apply. Letters of Interest are due Friday, September 18. The grant is... 
by Kevin Dooley, MD | Apr 11, 2018 | News and Information
Positive Attitude Patrick Warner is an optimistic person, and that didn’t change when he was diagnosed with a rare, untreatable muscle disease, inclusion body myositis (IBM). Life is an adventure, and Patrick is going to enjoy it. As his muscles gradually deteriorate,... 
by Kevin Dooley, MD | Feb 25, 2018 | News and Information
What is Rare Disease Day 2018? Rare Disease Day 2018 takes place on February 28. Since its start in Europe in 2008, Rare Disease Day has been an annual event that has grown to involve people all over the world. This is a day to celebrate all of us who live with a rare... 
by Kevin Dooley, MD | Jan 1, 2018 | News and Information
His muscles are being destroyed by a disease called inclusion body myositis (IBM), but Martin Jarry is resilient. After recovering from the shock of his diagnosis, he began to fight back, working to increase public awareness of myositis and to bring hope to other... 