• About Us
  • Contact Us
Cure IBM
  • Home
  • IBM FAQ
  • Diagnosis
    • Introduction
    • Symptoms
    • Examination
    • Blood Tests
    • Electromyogram (EMG) and Nerve Conduction Studies
    • Magnetic Resonance Imaging (MRI)
    • Muscle Biopsy
    • Misdiagnosis
  • Treatment
    • Introduction
    • Medications
    • Clinical Trials
    • Exercise
    • Nutrition and Weight Control
    • Falls
    • Swallowing
    • Psychology
  • Resources
    • Links
    • Glossary
  • IBM Blog
  • Donate
Menu
$68,245 Grant Available for Study of Inclusion Body Myositis

$68,245 Grant Available for Study of Inclusion Body Myositis

by Kevin Dooley, MD | Aug 26, 2020 | News and Information

The Orphan Disease Center 2020 Million Dollar Bike Ride Grant Program is offering a $68,245 grant for the study of inclusion body myositis (IBM). Researchers from around the world are eligible to apply. Letters of Interest are due Friday, September 18. The grant is...
Inclusion Body Myositis — Inspirational Tips from Patrick Warner

Inclusion Body Myositis — Inspirational Tips from Patrick Warner

by Kevin Dooley, MD | Apr 11, 2018 | News and Information

Positive Attitude Patrick Warner is an optimistic person, and that didn’t change when he was diagnosed with a rare, untreatable muscle disease, inclusion body myositis (IBM). Life is an adventure, and Patrick is going to enjoy it. As his muscles gradually deteriorate,...
Rare Disease Day 2018 and Inclusion Body Myositis

Rare Disease Day 2018 and Inclusion Body Myositis

by Kevin Dooley, MD | Feb 25, 2018 | News and Information

What is Rare Disease Day 2018? Rare Disease Day 2018 takes place on February 28. Since its start in Europe in 2008, Rare Disease Day has been an annual event that has grown to involve people all over the world. This is a day to celebrate all of us who live with a rare...
Running for Hope: Inspiration from Martin Jarry

Running for Hope: Inspiration from Martin Jarry

by Kevin Dooley, MD | Jan 1, 2018 | News and Information

His muscles are being destroyed by a disease called inclusion body myositis (IBM), but Martin Jarry is resilient. After recovering from the shock of his diagnosis, he began to fight back, working to increase public awareness of myositis and to bring hope to other...

Recent Posts

  • The IndeeLift and Inclusion Body Myositis
  • Arimoclomol for Inclusion Body Myositis – Clinical Trial Results
  • $68,245 Grant Available for Study of Inclusion Body Myositis
  • You can Bike, Walk, Run, or Ride for IBM on Saturday, June 13!
  • The Million Dollar Bike Ride Needs YOUR Help!

Archives

  • July 2021
  • March 2021
  • August 2020
  • June 2020
  • April 2020
  • March 2020
  • February 2020
  • January 2020
  • December 2019
  • June 2019
  • May 2019
  • April 2019
  • March 2019
  • January 2019
  • December 2018
  • November 2018
  • October 2018
  • April 2018
  • February 2018
  • January 2018
  • December 2017
  • November 2017

Tags

actvin a advocacy arimoclomol asking for help atrophy biomarker chloroquine clinical trial clinical trial endpoints clinical trials coronavirus COVID-19 Electrical Impedance Myography falls FDA fundraising hand function helpful devices IBMFRS IB Myositis YouTube Channel Inclusion Body Myositis Functional Rating Scale IndeeLift inflammation Late stage IBM Living with IBM MDBR Million Dollar Bike Ride mitochondria mri mTOR muscle biopsies muscle biopsy muscle degeneration muscle strength myositis clinic myostatin NT5C1A patient story personal story positive attitude rapamycin research specialty care sporadic inclusion body myositis Yale
  • Disclaimer
  • Privacy Policy
  • Terms of Use
  • Facebook
  • Twitter

© 2022 Cure IBM | Website design and digital media services by Abaton Consulting