Inclusion Body Myositis (IBM)

Inclusion body myositis is a rare, little known muscle disease, with no effective drug treatment.

Cure IBM is dedicated to inclusion body myositis awareness, education, and research.

Whether you are a patient or a physician, we hope to provide the information you need.

 

Team Cure IBM Will Ride in the 2019 Million Dollar Bike Ride!

 

Cure IBM has been selected to participate in the Million Dollar Bike Ride in Philadelphia, PA, on Saturday, June 8, 2019!

Team Cure IBM will be one of approximately 25 teams that will raise funds for their specific rare disease. The Orphan Disease Center at the University of Pennsylvania, the sponsor of this event, will distribute the money in research grants. Matching funds are available. ALL of the money (100%) raised by Team Cure IBM will fund inclusion body research.

Team Cure IBM needs riders, event volunteers, fundraisers, and donors. Join us!

REGISTRATION FOR RIDERS IS NOW OPEN!

General Information

Rider and Fundraiser Information

Click on the large blue button below to donate by credit card!

Donate to Team Cure IBM in the Million Dollar Bike Ride!

 

Checks should be made out to:

Trustees of the University of Pennsylvania

and mailed to:

Cure IBM

2020 5th Street, #654

Davis, CA 95617

Cure IBM will send the checks to the University of Pennsylvania so that they are properly credited to the inclusion body myositis fund.

Read about Kevin Dooley, the captain of Team Cure IBM, and the Million Dollar Bike Ride, in the Davis Enterprise newspaper.

Future updates will be posted on this page, The Cure IBM blog , the Cure IBM Facebook page , and on Twitter @cureibm.


 

Inclusion body myositis, sometimes called sporadic inclusion body myositis, causes gradually worsening muscle weakness, usually starting after the age of 40 or 50. Many people slowly progress from normal walking, to using a cane, then a walker, and finally a wheelchair over a time period of about 15 years, although this is extremely variable. Hand function worsens. Many people with IBM eventually become disabled, in some cases losing the ability to move their arms and legs, and also the ability to swallow. The age of onset and the rate of progression vary significantly from patient to patient.

The cause is unknown. The disease is characterized by muscle inflammation and muscle degeneration, but it has not been determined if the inflammation causes the degeneration, or if the degeneration causes the inflammation, or if something else starts the disease process.

Scientists and doctors are studying IBM, but they need more support. The disease is little known and underfunded, even when compared with other rare diseases. We have the tools. Research techniques have improved tremendously. Lack of money is the main obstacle slowing research progress. Now is the time to make a difference!

Introduction to Inclusion Body Myositis

What is IBM? Who gets it? How common is it?

Diagnosing IBM

The diagnosis of inclusion body myositis is based on symptoms of muscle weakness, physical exam findings, and several additional tests.

Treating IBM

Inclusion body myositis has no generally effective medical therapy, but many things can be done to improve the lives of people with IBM.

The Cure IBM Blog

My Personal Story

Support IBM Research

Join Cure IBM in the fight against Inclusion Body Myositis. Your support will help fund research and the development of treatment options for this debilitating disease.

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