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The IndeeLift and Inclusion Body Myositis

The IndeeLift and Inclusion Body Myositis

by Kevin Dooley, MD | Jul 4, 2021 | News and Information

The IndeeLift The IndeeLift is a lifting device that has now been modified to meet the needs of people with inclusion body myositis. Its primary purpose is to raise people up from the ground after they have fallen, but it has many other uses. The IndeeLift and Falls...
Arimoclomol for Inclusion Body Myositis – Clinical Trial Results

Arimoclomol for Inclusion Body Myositis – Clinical Trial Results

by Kevin Dooley, MD | Mar 30, 2021 | News and Information

Negative Results The biotech company Orphazyme announced negative results yesterday for the clinical trial of arimoclomol in the treatment of inclusion body myositis (IBM). The drug failed to meet the primary and secondary endpoints which were used to measure success....
$68,245 Grant Available for Study of Inclusion Body Myositis

$68,245 Grant Available for Study of Inclusion Body Myositis

by Kevin Dooley, MD | Aug 26, 2020 | News and Information

The Orphan Disease Center 2020 Million Dollar Bike Ride Grant Program is offering a $68,245 grant for the study of inclusion body myositis (IBM). Researchers from around the world are eligible to apply. Letters of Interest are due Friday, September 18. The grant is...
You can Bike, Walk, Run, or Ride for IBM on Saturday, June 13!

You can Bike, Walk, Run, or Ride for IBM on Saturday, June 13!

by Kevin Dooley, MD | Jun 10, 2020 | News and Information

JOIN US! On June 13, you can support the cause of inclusion body myositis by biking, walking, running, swimming, or riding in your own town or city. The Million Dollar Bike Ride has become a virtual event this year. Although it is unfortunate that Team Cure IBM cannot...
The Million Dollar Bike Ride Needs YOUR Help!

The Million Dollar Bike Ride Needs YOUR Help!

by Kevin Dooley, MD | Apr 14, 2020 | News and Information

Due to the coronavirus pandemic, Team Cure IBM will not be able to ride our bikes in Philadelphia this summer. However, although the University of Pennsylvania, the sponsor of the Million Dollar Bike Ride (MDBR), has cancelled the ride, the MDBR will still continue as...
Orphazyme Update Regarding Arimoclomol Clinical Trial During Coronavirus Pandemic

Orphazyme Update Regarding Arimoclomol Clinical Trial During Coronavirus Pandemic

by Kevin Dooley, MD | Mar 27, 2020 | News and Information

Thomas Blaettler, MD, the Chief Medical Office of Orphazyme, has released a statement to the global community regarding the status of the ongoing arimoclomol clinical trials during the coronavirus (COVID-19) pandemic. Arimoclomol is currently being studied for...
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Recent Posts

  • The IndeeLift and Inclusion Body Myositis
  • Arimoclomol for Inclusion Body Myositis – Clinical Trial Results
  • $68,245 Grant Available for Study of Inclusion Body Myositis
  • You can Bike, Walk, Run, or Ride for IBM on Saturday, June 13!
  • The Million Dollar Bike Ride Needs YOUR Help!

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