The Cure IBM Blog
Coach Randy Marks Thrives Despite Inclusion Body Myositis
Hall of Fame Night Randy Marks, who coached Villanova’s lacrosse team for 24 years, had the enormous pleasure of introducing his son, Brian, as he was inducted into the Villanova Athletics Hall of Fame last February. A former star athlete himself, Coach Marks was...
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Team Cure IBM is Ready to Ride in Philadelphia
Our team of 30 bike riders will be cycling on June 8 in the Million Dollar Bike Ride, an annual rare disease fundraising event sponsored by the Orphan Disease Center at the University of Pennsylvania. This year, for the first time, we have a team representing...
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Yale Seeks Inclusion Body Myositis Patients for Electrical Impedance Myography Study
Researchers at the Yale School of Medicine in New Haven, CT are looking for patients with inclusion body myositis (IBM) to participate in a study using Electrical Impedance Myography (EIM). The purpose of the study is to learn if EIM is useful for measuring the...
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Regeneron Cancels Clinical Trial of REGN2477 and REGN1033 for Inclusion Body Myositis
Regeneron Pharmaceuticals has confirmed the cancellation of its previously announced Phase 2 clinical trial for inclusion body myositis (IBM). Regeneron had planned to test two therapies in combination to treat this rare muscle disease, which causes gradually...
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Register for the Inclusion Body Myositis Team in the Million Dollar Bike Ride!
Registration for the 2019 Million Dollar Bike Ride is now open! You can now join Team Cure IBM and register to be a rider in the Million Dollar Bike Ride on June 8, 2019, in Philadelphia. Sponsored by the Orphan Disease Center of the University of Pennsylvania, this...
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Inclusion Body Myositis Specialty Clinic at Washington University, St. Louis
Washington University School of Medicine in St. Louis, MO, has announced the opening of an IBM Specialty Clinic devoted to inclusion body myositis. The clinic is run by Dr. Conrad “Chris” Weihl, a leading IBM clinician and researcher. Washington University is known...
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Team Cure IBM Will Ride in the 2019 Million Dollar Bike Ride!
Cure IBM is delighted to announce that we have been selected to participate in the Million Dollar Bike Ride in Philadelphia, PA, on Saturday, June 8, 2019! Sponsored by the Orphan Disease Center at the University of Pennsylvania, this annual festival brings together...
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Searching for Correlations: Muscle Strength, Muscle Biopsies, and MRI in Inclusion Body Myositis
In sporadic inclusion body myositis (sIBM), which comes first: inflammation or degeneration? Dr. Christopher Lindberg and his team of researchers in Sweden recently attempted to answer this question. Both of these disease processes are present in the muscles in IBM,...
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Jerry King and the IB Myositis YouTube Channel
IB Myositis is a YouTube video channel dedicated to inclusion body myositis. It is produced by Jerry King, who was diagnosed with this muscle disease in 2007. Jerry is now in an advanced stage of IBM, and he uses his experiences to share information and insights with...
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The Inclusion Body Myositis Functional Rating Scale (IBMFRS)
How do you know if a muscle disease like inclusion body myositis (IBM) is getting worse? How do you compare one patient to another? How do you decide if a new drug is working to slow the gradually worsening muscle weakness that is typical of this disease? How do you...
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