The Cure IBM Blog
Inclusion Body Myositis Specialty Clinic at Washington University, St. Louis
Washington University School of Medicine in St. Louis, MO, has announced the opening of an IBM Specialty Clinic devoted to inclusion body myositis. The clinic is run by Dr. Conrad “Chris” Weihl, a leading IBM clinician and researcher. Washington University is known...
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Team Cure IBM Will Ride in the 2019 Million Dollar Bike Ride!
Cure IBM is delighted to announce that we have been selected to participate in the Million Dollar Bike Ride in Philadelphia, PA, on Saturday, June 8, 2019! Sponsored by the Orphan Disease Center at the University of Pennsylvania, this annual festival brings together...
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Searching for Correlations: Muscle Strength, Muscle Biopsies, and MRI in Inclusion Body Myositis
In sporadic inclusion body myositis (sIBM), which comes first: inflammation or degeneration? Dr. Christopher Lindberg and his team of researchers in Sweden recently attempted to answer this question. Both of these disease processes are present in the muscles in IBM,...
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Jerry King and the IB Myositis YouTube Channel
IB Myositis is a YouTube video channel dedicated to inclusion body myositis. It is produced by Jerry King, who was diagnosed with this muscle disease in 2007. Jerry is now in an advanced stage of IBM, and he uses his experiences to share information and insights with...
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The Inclusion Body Myositis Functional Rating Scale (IBMFRS)
How do you know if a muscle disease like inclusion body myositis (IBM) is getting worse? How do you compare one patient to another? How do you decide if a new drug is working to slow the gradually worsening muscle weakness that is typical of this disease? How do you...
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Joe Sanchez Fights Inclusion Body Myositis with Exercise
When Joe Sanchez was diagnosed with sporadic inclusion body myositis (sIBM) five years ago, he couldn’t walk more than 1/3 mile, he was exhausted after climbing a flight of stairs, and he had trouble gripping a knife safely. He knew there was no medical treatment for...
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Inclusion Body Myositis — Inspirational Tips from Patrick Warner
Positive Attitude Patrick Warner is an optimistic person, and that didn’t change when he was diagnosed with a rare, untreatable muscle disease, inclusion body myositis (IBM). Life is an adventure, and Patrick is going to enjoy it. As his muscles gradually deteriorate,...
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Inclusion Body Myositis — Patrick Warner’s Accessible Home
Introduction Living independently with a muscle disease like inclusion body myositis (IBM) can be a daunting, but Patrick Warner has accepted the challenge. He views it as a puzzle that needs to be solved. Faced with a disability that involves both his hands and his...
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Rare Disease Day 2018 and Inclusion Body Myositis
What is Rare Disease Day 2018? Rare Disease Day 2018 takes place on February 28. Since its start in Europe in 2008, Rare Disease Day has been an annual event that has grown to involve people all over the world. This is a day to celebrate all of us who live with a rare...
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Running for Hope: Inspiration from Martin Jarry
His muscles are being destroyed by a disease called inclusion body myositis (IBM), but Martin Jarry is resilient. After recovering from the shock of his diagnosis, he began to fight back, working to increase public awareness of myositis and to bring hope to other...
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