The Cure IBM Blog
The Inclusion Body Myositis Functional Rating Scale (IBMFRS)
How do you know if a muscle disease like inclusion body myositis (IBM) is getting worse? How do you compare one patient to another? How do you decide if a new drug is working to slow the gradually worsening muscle weakness that is typical of this disease? How do you...
Joe Sanchez Fights Inclusion Body Myositis with Exercise
When Joe Sanchez was diagnosed with sporadic inclusion body myositis (sIBM) five years ago, he couldn’t walk more than 1/3 mile, he was exhausted after climbing a flight of stairs, and he had trouble gripping a knife safely. He knew there was no medical treatment for...
Inclusion Body Myositis — Inspirational Tips from Patrick Warner
Positive Attitude Patrick Warner is an optimistic person, and that didn’t change when he was diagnosed with a rare, untreatable muscle disease, inclusion body myositis (IBM). Life is an adventure, and Patrick is going to enjoy it. As his muscles gradually deteriorate,...
Inclusion Body Myositis — Patrick Warner’s Accessible Home
Introduction Living independently with a muscle disease like inclusion body myositis (IBM) can be a daunting, but Patrick Warner has accepted the challenge. He views it as a puzzle that needs to be solved. Faced with a disability that involves both his hands and his...
Rare Disease Day 2018 and Inclusion Body Myositis
What is Rare Disease Day 2018? Rare Disease Day 2018 takes place on February 28. Since its start in Europe in 2008, Rare Disease Day has been an annual event that has grown to involve people all over the world. This is a day to celebrate all of us who live with a rare...
Running for Hope: Inspiration from Martin Jarry
His muscles are being destroyed by a disease called inclusion body myositis (IBM), but Martin Jarry is resilient. After recovering from the shock of his diagnosis, he began to fight back, working to increase public awareness of myositis and to bring hope to other...
Rapamycin and Inclusion Body Myositis
From the soil of Easter Island to the clinics of Paris, the journey of rapamycin to its current position as a potential treatment for sporadic inclusion body myositis is a fascinating story of scientific discovery. A recent clinical trial provided encouraging results,...
Welcome to the Cure IBM Blog!
The purpose of the Cure IBM Blog is to share news and information about the muscle disease, inclusion body myositis (IBM). Articles will discuss research findings, clinical trials, medical information, meetings and events, motivational stories, caregiving, and...
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