The Cure IBM Blog
New ENMC Criteria for the Diagnosis of Inclusion Body Myositis
Introduction The European Neuromuscular Centre has published new diagnostic criteria for inclusion body myositis. The new criteria reflect our increasing knowledge about IBM, the practical experience of IBM experts, and new diagnostic tools. The revised criteria will...
Participants Needed for the INSPIRE-IBM Study
We Need Your Help Are you frustrated that medical science knows so little about inclusion body myositis? Do you wish that more pharmaceutical companies would fund clinical drug trials for IBM? You can help! The INSPIRE-IBM natural history study needs patients. If you...
Medicare Seeks Public Comments as it Considers Expanding Benefits to Include Seat Elevators for Power Wheelchairs
Medicare Policy and Wheelchair Seat Elevators Medicare is re-evaluating its policy of denying coverage for seat elevating systems for power wheelchairs, and is seeking public comments. If you live in the United States and have an interest in IBM, your input is needed!...
The IndeeLift and Inclusion Body Myositis
The IndeeLift The IndeeLift is a lifting device that has now been modified to meet the needs of people with inclusion body myositis. Its primary purpose is to raise people up from the ground after they have fallen, but it has many other uses. The IndeeLift and Falls...
Arimoclomol for Inclusion Body Myositis – Clinical Trial Results
Negative Results The biotech company Orphazyme announced negative results yesterday for the clinical trial of arimoclomol in the treatment of inclusion body myositis (IBM). The drug failed to meet the primary and secondary endpoints which were used to measure success....
$68,245 Grant Available for Study of Inclusion Body Myositis
The Orphan Disease Center 2020 Million Dollar Bike Ride Grant Program is offering a $68,245 grant for the study of inclusion body myositis (IBM). Researchers from around the world are eligible to apply. Letters of Interest are due Friday, September 18. The grant is...