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Orphazyme Update Regarding Arimoclomol Clinical Trial During Coronavirus Pandemic

Orphazyme Update Regarding Arimoclomol Clinical Trial During Coronavirus Pandemic

by Kevin Dooley, MD | Mar 27, 2020 | News and Information

Thomas Blaettler, MD, the Chief Medical Office of Orphazyme, has released a statement to the global community regarding the status of the ongoing arimoclomol clinical trials during the coronavirus (COVID-19) pandemic. Arimoclomol is currently being studied for...
Caution Regarding the Use of Chloroquine to Treat Coronavirus in Myositis Patients

Caution Regarding the Use of Chloroquine to Treat Coronavirus in Myositis Patients

by Kevin Dooley, MD | Mar 20, 2020 | News and Information

The following is a message written by Tom Lloyd, MD, a myositis specialist at the Johns Hopkins Medical Center. Can Chloroquine Cure Coronavirus?  Not so fast… In a press conference today, President Trump discussed what the FDA was doing to accelerate approval of...
AAVogen Seeks Investment Funding for Development of New Therapy to Treat Inclusion Body Myositis

AAVogen Seeks Investment Funding for Development of New Therapy to Treat Inclusion Body Myositis

by Kevin Dooley, MD | Mar 19, 2020 | News and Information

AAVogen, an early-stage biotech company, is developing a new treatment for inclusion body myositis (IBM). AVGN7 is a novel gene therapy treatment that is designed to treat IBM and other muscle wasting conditions. AAVogen has raised $2.3 million to date, mostly from...
$102,340 Grant Awarded for Inclusion Body Myositis Research

$102,340 Grant Awarded for Inclusion Body Myositis Research

by Kevin Dooley, MD | Feb 5, 2020 | News and Information

The 2019 Million Dollar Bike Ride grant of $102,340 for inclusion body myositis (IBM) research has been awarded to Dr. Steven A. Greenberg of Brigham and Women’s Hospital and Harvard Medical School. Dr. Greenberg will study, “Development of a Chemokine Targeted...
New Research Regarding Hand Function in Inclusion Body Myositis

New Research Regarding Hand Function in Inclusion Body Myositis

by Kevin Dooley, MD | Jan 29, 2020 | News and Information

A recently published study finds that the Inclusion Body Myositis Functional Rating Scale (IBMFRS) does not correlate as well as expected with measures of grip strength and finger flexor strength. This suggests that the IBMFRS could be improved to more accurately...
Arimoclomol Receives FDA Fast Track Designation for Inclusion Body Myositis

Arimoclomol Receives FDA Fast Track Designation for Inclusion Body Myositis

by Kevin Dooley, MD | Dec 18, 2019 | News and Information

Arimoclomol, an investigational drug currently in a Phase 2/3 trial for inclusion body myositis (IBM), has received Fast Track designation from the FDA for treatment of this disabling muscle disease. This designation is designed to shorten the time needed for the FDA...
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