by Kevin Dooley, MD | Nov 5, 2018 | News and Information
How do you know if a muscle disease like inclusion body myositis (IBM) is getting worse? How do you compare one patient to another? How do you decide if a new drug is working to slow the gradually worsening muscle weakness that is typical of this disease? How do you... 
by Kevin Dooley, MD | Oct 26, 2018 | News and Information
When Joe Sanchez was diagnosed with sporadic inclusion body myositis (sIBM) five years ago, he couldn’t walk more than 1/3 mile, he was exhausted after climbing a flight of stairs, and he had trouble gripping a knife safely. He knew there was no medical treatment for... 
by Kevin Dooley, MD | Apr 11, 2018 | News and Information
Positive Attitude Patrick Warner is an optimistic person, and that didn’t change when he was diagnosed with a rare, untreatable muscle disease, inclusion body myositis (IBM). Life is an adventure, and Patrick is going to enjoy it. As his muscles gradually deteriorate,... 
by Kevin Dooley, MD | Apr 7, 2018 | News and Information
Introduction Living independently with a muscle disease like inclusion body myositis (IBM) can be a daunting, but Patrick Warner has accepted the challenge. He views it as a puzzle that needs to be solved. Faced with a disability that involves both his hands and his... 
by Kevin Dooley, MD | Feb 25, 2018 | News and Information
What is Rare Disease Day 2018? Rare Disease Day 2018 takes place on February 28. Since its start in Europe in 2008, Rare Disease Day has been an annual event that has grown to involve people all over the world. This is a day to celebrate all of us who live with a rare... 